Featured Patient Story
Mackenzie Boedicker
In April of 2017, I was diagnosed at the age of 23 with AL amyloidosis.
I noticed a lump in the back of my throat that had been increasing in size. I saw an ENT who incorrectly attributed the lump to allergies. A second ENT did a biopsy of the lump and the results indicated that the tissue had characteristics of amyloid. I was referred to a hematologist who performed a bone marrow biopsy and confirmed the diagnosis. For a second opinion, I met with an amyloidosis specialist at the Mayo Clinic in Rochester, MN.
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2024 Spring Newsletter
Catch up on the latest happenings in our spring newsletter.
WAINUA (eplontersen) granted first-ever regulatory approval in the US for the treatment of adults with polyneuropathy of hereditary transthyretin-mediated amyloidosis
December 21, 2023
Calendar & Upcoming Events
WEBINAR: What is new and exciting in ATTR cardiac amyloidosis 2024
What's new and exciting in ATTR cardiac amyloidosis 2024 Webinar - April 29th - 3:00 pm ET
WEBINAR - Treating Amyloidosis – insights from specialist center experts
WEBINAR
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Gray Logo T Shirt$15.00** FLASH SALE - WHILE SUPPLIES LAST ** Wear our shirt and increase amyloidosis awareness in our community!
50% cotton, 50% polyester Color: Gray – a small logo on the front side; “You are Strong” wording on the back side.
*** Please note: Medium and Large sizes are SOLD OUT. ***
Available sizes : S, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$25.00Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$25.00Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
Our Latest Webinar
Beyond Standard of Care Treatment for Light Chain (AL) Amyloidosis: The Promise of Tomorrow
Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY
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